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Posted about 4 years ago

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I've recently been diagnosed with ependymoma. I had a surgery to remove most of the tumors, but I'm still going to need radiotherapy to get rid of what's left of the microscopic disease. I'm sure others here on Kidzworld have experience with cancer, tumors, or have family members who have gone through similar circumstances. I just want to make this a place to share, so let me start.

About a year ago, I got a cold. Every time I would cough or sneeze there would be a shooting pain down my tailbone. Eventually I recovered from the cold, but the pain didn't stop, and it eventually spread to where it was my entire lower body and back, and it was no longer just shooting, but constant. I had an MRI in February 2013 to see if they could find anything, but it came back inconclusive. 10 more months of worsening symptoms later, I get another MRI focused on my lower spine where they find 'lesions'. They admit me to the hospital the same night, and I've been there for the past week, and am only now back at home. They tell me that they think I have tumors in my spine. I was in the hospital for two days before I had the surgery. They made an incision running pretty much the entire length of my spine (from shoulder blades to tail bone) and I'm in for a long, long recovery. 

I'm not looking for pity. I just am looking for a place to share, and to let others share, and as a member of this community for over 4 years, I feel comfortable sharing here. 



Posted about 4 years ago

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aw thats sad but thats also good you are feeling better now, i dont know what you are saying but sorry to hear that 


Posted almost 4 years ago

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Posts: 30521

I dont know where to start....Frown 

I has some experience... but not alot. 

Our granny had cancer for 4 years and it was 'cured' and they said it was in the 'remission] but just his month we heard its back again.  We're not supposed to know about it being back cos of the family getting together at Chrstmas. 

What I want to say Skittlez is that you have friends on here [and friends and family everywhere]  that loves you and wants you and all cancer sufferers to fight back...and get well again. 












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Posted almost 4 years ago

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Frown That's sad, but you should know like hugebear said you have friends and family who want you to feel better. 

Being normal is so boring~
Why not be insane instead?
Devil

6000th post 9/16/2014 6:13 PM Big Grin
8888th post 3/27/2015 (For you huge! Big Grin)


Posted almost 4 years ago

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You shouldn't get radiation, it'll just kill you faster.



Posted almost 4 years ago

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"Teh_Skittlez" wrote:

I've recently been diagnosed with ependymoma. I had a surgery to remove most of the tumors, but I'm still going to need radiotherapy to get rid of what's left of the microscopic disease. I'm sure others here on Kidzworld have experience with cancer, tumors, or have family members who have gone through similar circumstances. I just want to make this a place to share, so let me start.



About a year ago, I got a cold. Every time I would cough or sneeze there would be a shooting pain down my tailbone. Eventually I recovered from the cold, but the pain didn't stop, and it eventually spread to where it was my entire lower body and back, and it was no longer just shooting, but constant. I had an MRI in February 2013 to see if they could find anything, but it came back inconclusive. 10 more months of worsening symptoms later, I get another MRI focused on my lower spine where they find 'lesions'. They admit me to the hospital the same night, and I've been there for the past week, and am only now back at home. They tell me that they think I have tumors in my spine. I was in the hospital for two days before I had the surgery. They made an incision running pretty much the entire length of my spine (from shoulder blades to tail bone) and I'm in for a long, long recovery. 



I'm not looking for pity. I just am looking for a place to share, and to let others share, and as a member of this community for over 4 years, I feel comfortable sharing here. 




 
I hope you feel ALOT better from over those years. I know it's hard for you and most people don't understand. Well, there are a lot of people on here and in the real world who really care about you. Thanks for sharing. That really touched my heart. 



Posted almost 4 years ago

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"Betzy123" wrote:

You shouldn't get radiation, it'll just kill you faster.


Radiation will just increase the likelihood of future cancers. I have a feeling letting the tumors regrow and take over my central nervous system might be worse for me than a few weeks of radiotherapy. 


Posted almost 4 years ago

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"Teh_Skittlez" wrote:



"Betzy123" wrote:


You shouldn't get radiation, it'll just kill you faster.


Radiation will just increase the likelihood of future cancers. I have a feeling letting the tumors regrow and take over my central nervous system might be worse for me than a few weeks of radiotherapy. 


Actually, let me re-word that, you shouldn't get any modern treatment for cancer. 
Natural methods will get rid of the cancer, and it's a LOT better for your health.  



Posted almost 4 years ago

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"Betzy123" wrote:



"Teh_Skittlez" wrote:








"Betzy123" wrote:




You shouldn't get radiation, it'll just kill you faster.


Radiation will just increase the likelihood of future cancers. I have a feeling letting the tumors regrow and take over my central nervous system might be worse for me than a few weeks of radiotherapy. 


Actually, let me re-word that, you shouldn't get any modern treatment for cancer. 
Natural methods will get rid of the cancer, and it's a LOT better for your health.  


Define 'natural methods'.

I'm not opposed to things other than radiation, I mean, nobody wants to have their spinal cord blasted with radiation that is specifically designed to kill cells. It's definitely not my preference, but neither is this situation to begin with.  


Posted almost 4 years ago

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Do you know what your recovery process entails? I imagine spinal surgery would mean you're done walking for a while until it heals

I've seen things you people wouldn't believe. Attack ships on fire off the shoulder of Orion. I watched C-beams glitter in the dark near the Tannhäuser gate. All those moments will be lost in time... like tears in rain...


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